ITK is currently seeking to fill the following role:
Request for Proposals (RFP): Supporting Data and Information Privacy and Security for the National Inuit Health Survey
Submission Deadline: September 20, 2019.
I. Organizational Background
Inuit Tapiriit Kanatami (ITK) is a federally incorporated registered charitable organization representing and promoting the interests of over 65,000 Inuit in Canada on a wide variety of environmental, social, cultural, and political issues and challenges on the national level. ITK works on behalf of Inuit who live primarily in the four regions of Inuit Nunangat, the Inuit Homeland: Inuvialuit Settlement Region (Northwest Territories), Nunavut, Nunavik (northern Québec), and Nunatsiavut (northern Labrador), as well as Inuit located in urban centres such as Ottawa, Montreal and Edmonton.
ITK represents the rights and interests of Inuit at the national level through a democratic governance structure that represents all Inuit regions. ITK advocates for policies, programs and services that impact the health, social, cultural, political and environmental issues facing Inuit today.
ITK is governed by a Board of Directors that is composed of the following members:
- President, Inuvialuit Regional Corporation (IRC)
- President, Makivik Corporation
- President, Nunavut Tunngavik Inc. (NTI)
- President, Nunatsiavut Government
In addition to voting members, the following non-voting Permanent Participant Representatives also sit on the Board:
- President, Inuit Circumpolar Council (ICC) Canada
- President, Pauktuutit Inuit Women of Canada
- President, National Inuit Youth Council
II. The National Inuit Health Survey
Budget 2018 announced $82 million over 10 years, with $6 million per year ongoing for the co-creation of a permanent Inuit Health Survey (IHS). Funding will build capacity in Inuit communities to develop and collect survey information and support Inuit self-determination in setting the research agenda in regions and communities. The survey will be Inuit-determined and co-created through partnerships based on self-determination, respect, and transparency, as outlined in the National Inuit Strategy on Research.
The National Inuit Health Survey Working Group (NIHSWG), in partnership with IHS Steering Committees in each of the four Inuit regions, is leading all stages of IHS development, implementation and reporting. The NIHSWG is a sub-committee of the National Inuit Committee on Health (NICoH), which reports to the ITK Board of Directors.
III. Privacy and Data Security Needs
With sustainable funding for a permanent National Inuit Health Survey, ITK and its regional partner organizations are entering into a new phase of gathering, holding and managing health data. ITK and its regional partners will need to put in place infrastructure, policies, procedures and practices that will ensure data is securely held and that respondents’ health information is protected. The infrastructure, policies and procedures may also serve as a basis for future data holding activities to be undertaken by ITK and the regions.
IV. Scope of Work Requirements
The successful applicant will be required to undertake the following work:
- Provide analysis and advice on data flows for the collection, use, retention and stewardship of Inuit Health Survey data by ITK and its regional partner organizations.
- Undertake an assessment of the capacities and gaps to be filled at ITK and in the regions to ensure the privacy and security of Inuit Health Survey data and information.
- Develop a work plan/timeline of steps to be taken by ITK and its regional partner organizations to ensure the privacy and security of Inuit Health Survey data and information.
- Provide advice on components and language to be included in a National Inuit Health Survey Data Management Agreement.
- Take a capacity development approach to the above work.
- Recognize that flexibility in the above work may be required as plans and processes for the National Inuit Health Survey are developed.
V. Summary of Request for Proposals
Through this RFP, we are seeking experienced health information privacy and security specialists who can support ITK and its regional partner organizations to put in place systems for collecting, holding and maintaining Inuit Health Survey data. We will assess proposals based on the following criteria (please include in your proposal):
- Qualifications of the applicant, including past experience, interest and a proven track record on advising organizations on health data security and privacy.
- Project description, outlining a sound, comprehensive approach that covers all tasks outlined in section IV (Scope of Work Requirements).
- Achievable milestones.
- Budget and budget justification that fit with the project description and milestones.
- Experience in working with Indigenous organizations on data privacy and security.
- We anticipate that the work required for this project will start on October 1, 2019 and end on March 31, 2020.
Budget: Value for money will be a key consideration in assessing the proposals.
If you have any questions or need clarification, please contact: